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Guilt as a carer

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Guilt as a carer “How’s mum Lou?” Pops into my inbox several times.   Often, it’s too much to even think about.   The answer isn’t going to be good. Every time. Those who mum talks to think she sounds the same.   She doesn’t have an awareness of how the clock is ticking for her.   Likely a good thing right? Well let’s face it, dementia and heart failure is only going in one direction and I’m nothing if pragmatic.   Which means, I deal with things without my head buried in the sand. Right now, my head IS buried in the sand. So, heart failure means the heart isn’t pumping as it should. Mum has diastolic dysfunction. Which means it isn’t filling up as it should.   The blood can only back up into the lungs, creating a cough.   Initially I explained this to mum.   Yet she now says, “Ohh got   a bit of phlegm.” Or “Ohh silly tickle.” And there’s not much point keep telling her. Why? To create panic?   What’s the po...
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My site has gone!

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Welcome to those of you who are new here.   Those of you who hopped over from the other website (dementiamumandme.com) I'm so so sorry! What happened to our tales and adventures?  They have all disappeared as my account is locked.  I'm gutted.  While they are sorting this out (it seems a long tale...) I will endeavour to update you via this new website.  Mum is still with us and still fighting every day to live her best life. To date, I have loved writing about our adventures over on the other blog, with the ideal that I could keep it there and have a look at the photos and read some things.  Yet it's gone. (sad face with a tear gently rolling down the cheek).  For me, creating beautiful photos, writing and blogs is partly therapy and i was at the stage of thinking it might be time to write a little book in relation to how i have found 'things' while living with a mother with dementia.  So, let's not be beaten, rather let's start again wit...
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Technical errors

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This is annoying but a bad sentence to start a blog about.  A blog post which is supposed to infuse positivity. Yet Siteground are the hosts who have taken down my website (I refused to pay them the hundreds of pounds they wanted to host my site for another year- so in theory, my fault) and I can't get it back without paying them more money.  Sad really as this held memories of my writing from our adventures with mum which was the whole reason I started a blog. To remember the journey from diagnosis to crossing over.  They won't give me back my writing and it's made me feel a little sad. So, in case you don't know, running a blog costs a lot of money and time.  But it's something I love and can't get enough of. Sometimes you will see some links on the blog which have affiliate links to them. This means if you click them and buy something, it helps to earn a few pennies on the blog so over time we hope this will help to finance running the blog (it doesn'...
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